Has anyone been able to get their MCAS under control?

I need some positivity today. I feel like no matter what I do or try I still end up with severe reactions. I feel like I can’t even be alone in case I have one and need help. I’m on 4 Allegra/day plus pecid before dinner and an antihistamine nasal spray. Even with all that and cutting my diet back to chicken, rice, and oatmeal. I’m having big reactions still. Sudden rashes, throat swelling, skyrocketing heart rate, and others. So then I have to take Benadryl too which comes with it’s own short and long term issues.

I get to see a mast cell specialist after Christmas but until then I’m suffering. I feel so out of control of my own body. Please tell me it gets better. Living like this is terrifying especially when none of the ER or current doctors know anything about it and don’t help me. I’ve been to the ER 5x since June and they just make me sit there for hours until it passes while I’m begging them for help. They just tell me it’s panic attacks.

There are things that get this under control right? Things get better eventually right?

Edit: Thanks everyone, truly. It helps to know there’s going to be better times again. In my state there are two doctors that’s treat MCAS/mast cell diseases so getting in is proving tricky. I have an appointment the day after Christmas and I could be more excited for it. They’re an immunologist/allergist who specializing in these issues. I have a team of specialists right now but no one wants to mess with anything until I see her. The most support I have is my regular allergist who told me it was okay to up the antihistamine doses. But that’s all he knows how to do.

Anyways I really appreciate you guys. I’m extra upset today because yesterday I had my bone marrow biopsy and I had a severe reaction to the lidocaine after warning the staff that it’s a possibility. They were nice during it but I could tell they thought it was just a panic attack. I reacted after the procedure was over while I was drinking water. My whole right side of my face went numb, I couldn’t take a breath, my heart skyrocketed, and my whole body flushed within seconds. Even then they were apprehensive to call it a full allergy. They just said it was “borderline”. Every time I have a reaction I feel so scared and depressed. But I’m so thankful to hear, I’m not alone, and that it can get better.

I can’t wait to see this doctor who can help and understands.