I don't know how you all do it.

I don't have LC myself, but my fiance has been sick for nearly 3 years at this point. I have been taking care of her daily for nearly 3 years, but it is hard for me to keep hope at the moment. Last wednesday I had to go to the office for a bit, so my mom would take care of her for the day. She hadn't seen my mom in nearly 2 years, and this turned out to be too much for her emotionally. The last few months she was finally making steps again, being able to have a normal day/night schedule and she was even able to be downstairs for most of the day. Having her laying on the couch instead of upstairs in bed has been a really huge improvement.

Since last wednesday she is back in bed, in complete darkness, sleeping nearly 18 hours a day, the 6 hours she is awake being spend on eating and laying completely still in bed. I cannot watch it anymore, but there is no way I am going to let her down. There is 0 medical help available here in the netherlands. They have openned expert centres but they can see only a very limited amount of people.

Somehow, she is still able to be relatively optimistic. She is convinced she will make it through all of this. I am not so sure myself. Every day on this sub I see a lot of you still very hopefull and optimistic. I really don't know how you are able to keep that up, but it is really good to see that you are!

She is right now far from the most severe she has ever been, but every time she has a substanticial relapse I get more and more hopeless. It feels like this is never going to end.